Health and Medical Guide to Metabolic Problems Leukodystrophies Health information topics about Leukodystrophies: Clinical Trials 1. ClinicalTrials.gov: Leukodystrophy, Globoid Cell National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D007965&recruiting... 2. ClinicalTrials.gov: Adrenoleukodystrophy National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D000326&recruiting... 3. ClinicalTrials.gov: Leukodystrophy, Metachromatic National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D007966&recruiting... 4. ClinicalTrials.gov: Canavan Disease National Institutes of Health http://clinicaltrials.gov/ct/gui/action/FindCondition?ui=D017825&recruiting... Directories 1. US Clinic Directory Search Children's Health Care System, Seattle http://www.genetests.org/servlet/access?id=8888891&key=yLoqrsrCVms-M&fcn=y&... 2. Laboratory Directory-GeneReviews Children's Health Care System, Seattle http://www.genetests.org/servlet/access?id=8888891&key=xW0l31Z2a4hTc&fcn=y&... 3. Genetic and Rare Diseases Information Center Office of Rare Diseases http://rarediseases.info.nih.gov/html/resources/info_cntr.html Genetics 1. Genes and Disease: Zellweger Syndrome National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 2. Genetics Home Reference: Alexander disease National Library of Medicine http://ghr.nlm.nih.gov/condition=alexanderdisease 3. Genetics Home Reference: Canavan disease National Library of Medicine http://ghr.nlm.nih.gov/condition=canavandisease 4. Genes and Disease: Adrenoleukodystrophy National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 5. Genes and Disease: Refsum Disease National Center for Biotechnology Information http://www.ncbi.nlm.nih.gov/books/bv.fcgi?call=bv.View..ShowSection&rid=gnd... 6. Genetics Home Reference: Krabbe disease National Library of Medicine http://ghr.nlm.nih.gov/condition=krabbedisease National Institutes of Health 1. Leukodystrophy National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/leukodys/leukodys.htm Organizations 1. United Leukodystrophy Foundation http://www.ulf.org/ 2. National Institute of Neurological Disorders and S http://www.ninds.nih.gov/ 3. Hunter's Hope Foundation http://www.huntershope.org/ 4. Canavan Foundation http://www.canavanfoundation.org/ Overviews 1. What Are Leukodystrophies? Hunter's Hope Foundation http://www.huntershope.org/krabbe/other_leukos.asp Specific Conditions 1. Adrenoleukodystrophy National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/adrenoleukodystrophy/adrenoleukodystroph... 2. Alexander Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/alexander_disease/alexander_disease.htm 3. Canavan Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/canavan/canavan.htm 4. Infantile Refsum Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/refsum_infantile/refsum_infantile.htm 5. Krabbe Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/krabbe/krabbe.htm 6. Metachromatic Leukodystrophy National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/metachromatic_leukodystrophy/metachromat... 7. Pelizaeus-Merzbacher Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/pelizaeus_merzbacher/pelizaeus_merzbache... 8. Refsum Disease National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/refsum/refsum.htm 9. Zellweger Syndrome National Institute of Neurological Disorders and Stroke http://www.ninds.nih.gov/disorders/zellweger/zellweger.htm Treatment 1. Treatment Hunter's Hope Foundation http://www.huntershope.org/krabbe/treatment.asp   Recommended Resources: Yahoo! News: Medications/Drugs News Medications/Drugs News Clinical Trials Update: July 29, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Clinical Trials Update: July 28, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: FDA considering changes to risky drug safeguards (Reuters) Reuters - Safeguards to protect patients from risky drugs should have less paperwork and more consistency, drugmakers and pharmacy representatives said this week during a U.S. Food and Drug Administration meeting. Clinical Trials Update: July 27, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: New health policy: encouraging friendships? (Reuters) Reuters - Having good social relationships -- friends, marriage or children -- may be every bit as important to a healthy lifespan as quitting smoking, losing weight or taking certain medications, U.S. researchers reported on Tuesday. Not All Epilepsy Drugs Raise Suicide Risk: Study (HealthDay) HealthDay - MONDAY, July 26 (HealthDay News) --Since 2008, the U.S. Food and Drug Administration has required that all epilepsy drugs bear a warning label about an increased risk of suicidal behaviors, but German doctors report that only certain medications may increase the risk of self-harm. Only some epilepsy drugs may raise suicide risk (Reuters) Reuters - While all epilepsy drugs carry a warning about an increased risk of suicidal behavior, it may only be certain newer medications that are connected to the hazard, a study published Monday suggests. Attention deficit medication helps drug addicts: study (AFP) AFP - The active ingredient in Ritalin, a medication used to control the symptoms of attention deficit hyperactivity disorder, or ADHD, could help boost self-control in cocaine addicts, a study published Monday showed. Clinical Trials Update: July 23, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Clinical Trials Update: July 22, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: Lethal mixture drives AIDS pandemic in ex-Soviet bloc (AFP) AFP - Official indifference, stigma and a blinkered reflex to criminalise drug addicts have turned Eastern Europe and Central Asia into the region where HIV is spreading fastest, the world AIDS forum heard. Clinical Trials Update: July 21, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: U.S. halts new enrollment in Glaxo's Avandia trial (Reuters) Reuters - U.S. health officials have halted enrollment of new patients in a clinical trial of GlaxoSmithKline Plc's diabetes pill Avandia while regulators consider if the drug should stay on the market. California city plans mass production of medical marijuana (AFP) AFP - California city Oakland has approved draft legislation moving it a step closer to legalizing the large-scale production of medical marijuana, a city council clerk said on Wednesday. Clinical Trials Update: July 20, 2010 (HealthDay) HealthDay - (HealthDay News) -- Here are the latest clinical trials, courtesy of ClinicalConnection.com: